Monday, June 28, 2010

Cuteness contest

So Annabelles brother, Matthew gets to bring home a bunny rabbit from school to look after for the weekend. On the first day Annabelle eyed out the bunny, as if she was thinking "why are they all paying so much attention to that fur ball and none to me!" Then she became more interested and even crawled up a step (first time doing this) to get closer to the cage. She scoped out the competition and eventually conceded it was a tie!

Thursday, June 17, 2010

Yes I can hear I have selective hearing because I'm 2

So we have always thought Annabelle could hear but it was brought into question when a speech therapist was doing an evaluation,( Annabelle has no speech she makes sounds, mostly vowels and of course the incessant 2 year old whining!) and did the test where you rattle something behind the child and see if they turn. Well Annabelle turned to the right but didn't turn to the left. So then we were worried that she couldn't hear in her left ear, and we proceeded to take Annabelle to a formal evaluation. They put Annabelle in booth and piped sounds directly in her ears and if she turned then a bird in a box would light up. She would consistently turn to the right but not to the left, they recommended we do an ABR test - auditory brainstem response test. This is a test where the child is sedated and with a special test it checks if the brain is actually hearing the sounds.

We get up 5am in the morning to get up to CHOC to get the test done at 7 am. They gave us the results straight away, yes Annabelle has normal hearing in both ears. I should have known my daughter loves to pass tests!

Monday, June 14, 2010

VitalStim - the importance of being able to swallow!

Ever since Annabelle was about 2 weeks old I had trouble feeding her. Because I think breast milk is the best thing for a baby I persevered even though she arched back, lost her latch on, coughed choked, burped, cried, refused to feed, bit me, had to give up loads of foods because of all her allergies I never gave up! I eventually figured out that she was a child that needed little and often feeds and that lying on the bed and I would cradle her she wouldn't arch so much and I could keep her latched on long enough to get enough and she wouldn't cough and choke as much either.
When she turned 6 months I started trying her on solids it was a bit of a disaster to say the least her tongue thrust was so strong it just pushed any puree out as soon as I got it in, the food that did go in she coughed and choked on, we weren't getting any therapies yet and I didn't know what to do but thought maybe she wasn't ready for solids so put it on hold.
We started a group program when she was 7 months old and only received OT when she was 12 months old, I got a few tips on feeding from the OT's at the group program and heard about something called a swallow study, I asked our pediatrician about this and he said that the OT needs to do an evaluation, eventually got the OT at CCS to do an evaluation. They weren't sure if Annabelle was aspirating but I convinced them to recommend we do a swallow study ( this is where they x-Ray the child while feeding and they can see how and where is goes down). Annabelle was 15 months when we did the first swallow study it was found she was aspirating ( when she swallowed the airway would not close properly and liquid/food would go into her lungs) and she wouldn't always cough when this happened this is called silent aspirating, and aspirating on thin, thick liquids and purees.When this happens you are at high risk of getting chest infections, pneumonia because there are objects in the lungs that shouldn't be there. Luckily Annabelle never had chest infections because she was mostly breast fed. But she did alway have a runny nose this was because when she swallowed she would also reflux up into her nose.
Well the recommendations from the swallow study was that we see a GI, we had already taken Annabelle to see a GI when Annabelle was 6 months old, she had said that all of Annabelle's problems were neurological and that she couldn't help us (but proceeded to charge us for
the appointment anyway) Well we thought we would get a second opinion this time this GI suggested that Annabelle should get a g-tube ( this is a surgery where the a tube is fitted directly to the stomach and a button is placed on the belly and food can be syringed directly into the stomach) Well I am not big on any kind of surgery especially not on my 15 month old child.

I had heard about this therapy called E stim / VitalStim and I asked the GI if would could try this out before we went ahead with anything as invasive as surgery, we got referred over to CHOC Rehab for an evaluation. They said Annabelle would be a good candidate for trying VitalStim, we started VitalStim a year ago.
What is VitalStim? Electrical stimulation therapy is a specialized form of neuro-muscular electrical stimulation designed to treat dysphagia (difficulty swallowing). It is a non-invasive therapy that uses a small electrical current delivered by specially designed electrodes, which are placed on the face and or neck. The current stimulates the motor nerves and the muscles responsible for swallowing. This stimulation facilitates strength, coordination, endurance and increases sensory feedback and timing in the muscles involved in feeding and swallowing. While the electrical stimulation is being administered, a certified therapist helps patients train their muscles with special exercises. With repeated therapy, muscles are trained the movements required for swallow. The main goal of electrical stimulation therapy is to strengthen weak muscles and to help in the recovery of motor control.

We went twice a week for a year we had two great therapists, after 6 months we did another swallow study and Annabelle wasn't aspirating on anything during the study.
We continued with therapy for 6 more months and the therapist and I decided that we should take a break for three months and then do another swallow study to see if there is carry over of the therapy or if Annabelle regresses. There is always a chance that the muscles will atrophy if they are not used. So the best way to prevent this is keep Annabelle eating. I will keep you posted.